Still Here

In case anyone was wondering!

Apologies for the lack of posts over the summer, turns out that having two jobs, and two kids and trying to write a book is ever so slightly time consuming, and doesn’t leave time for much else!

Also *types under breath* I kind of hate summer and find it one of my most difficult times of year.  There, said it.  I know it’s a hugely unpopular opinion, but for me summer is mainly sweating, getting migraines from the sun, and trying to cram in as much QUALITY FAMILY TIME with my kids as possible whilst battling the urge to strangle them when I step on yet another mothafucking piece of lego with goddam bare feet.  This summer has been an odd one because I’ve been working four days a week, so I’ve not been around much and then when I have, I’ve felt this incredible pressure for us to have Perfect Family Fun together, which rarely if ever works out how I envisage it.

We have had some good times though, and thanks to Chris taking some annual leave each week to be home with the boys, they’ve enjoyed having him around a bit more and not missed me too much, I don’t think.

My new job is going…ehhh…well, it’s going anyway.  My CIDP is behaving itself, and the book I’m writing is the slowest project ever but it’s keeping me sane (ish).

And honestly, that’s pretty much it.  Every now and again I think about archiving this place, since I’m not really actively blogging anymore, but then I see people finding old posts about CIDP/Molar pregnancy/Miscarriage etc through their google searches, and I think- ‘well what if reading about my experiences helps someone?’  So it’s staying, for now.

Who knows, maybe one day when I have more time (not clear when that’ll be, but let’s play pretend) I’ll be a bit more active (and possibly even witty?!) but for now, this will have to do 😉





New Beginnings

Happy 1st May / Beltane Blessings!


I thought I’d better brush aside some of the tumbleweed blowing through this place, after only posting once in the entire month of April.  In my defence I’ve been very busy, but I look set to get even busier in the coming weeks so I thought I’d better at least say hello and give a brief update for anyone who’s interested, before disappearing again for a few weeks!

This time last year I was on the verge of some big changes, and had some major decisions to make, so on the 30th April, aka Beltane, I lit some candles, got myself a cold beer and sat cross legged on my bed and dug deep to figure out what it was I wanted and needed to do in the coming months.  Looking back now, I can see how important those decisions were, and appreciate how brutally honest I was with myself that evening.

So again last night I did the same thing, (except, switch beer for wine, and add some dubious-smelling incense into the mix), and this morning I’m feeling good about the challenges that lie ahead.

This summer I’ll be starting a new job (probably within the next couple of weeks), starting therapy (this Wednesday) and starting a brand-new writing project  The job is back at my old hospital, although in a very different role, the therapy is high-intensity CBT, and the writing project is a young-adult fairytale with a twist.  All of which I’m pretty excited about (well, I don’t know that I’d say ‘excited’ for the therapy actually, but…’positive’, maybe?!)

Between those three things I’m not sure how I’m going to have time for much else to be honest, but I will try to share as much as I can about my experiences, in case it helps anyone else.

I’m still posting my YA contemporary over on Wattpad, and I have a loyal fan base of about ten readers (most of whom are friends/family) who are consistently reading every chapter update and telling me they’re enjoying it, which I think is all most of us really want when we share our work, so I’m calling it a success so far.  I’ve also been pushing myself outside my comfort zone in other ways, like entering writing contests, submitting short stories for anthologies, and taking up burlesque dancing!

My CIDP continues to be well-managed and I’m hoping to reduce my dose of immunoglobulins over the summer months, and my PCOS is also behaving, so for once I don’t feel like I’m using up half my energy in a battle of wills with my own body.

Generally, aside from crippling anxiety, (which the therapy will hopefully help with), and a distinct lack of money (which the job should surely help with), life is good.  (Although obviously I hate typing that for fear of jinxing myself in some way, damn anxiety.)








School’s out for summer!

It is officially the summer holidays 😀

You’d think that at 27 years old and with no school-age children i’d be at best ambivalent about this fact, and more likely mildly irritated by the sudden surge in prices and crowds almost everywhere.
It’s true, i am struggling to adjust to the fact there are suddenly large children everywhere and that traffic flow is unpredictable.  Certainly, when we went to one of the bigger soft play areas in Manchester earlier this week, i was cursing the lack of formal education over the summer as the place was rammed and definitely impacted on how enjoyable the experience was, both for us and for the boys.
However, as the girlfriend of a university student i can’t be too grumpy about the end of the academic year as it signifies the beginning of Chris’s 6 weeks off.  SIX WEEKS! I am very aware that this will Never Happen Again, as he starts his final year in September, so i’m intending to make the most of it, although i have to say i’m not sure my idea of ‘making the most of it’ will tally with his idea of ‘making the most of it’
My concept of making the most of Chris being off for 6 weeks:
  • Lots of family days out
  • Watching a movie every single night when i’m not in work- some of us have to earn a living 😉
  • DIY (Not that i enjoy it you understand, or even enjoy inflicting upon other people, i’m not a sadist, it’s just there are things that need doing that never get done that apparently no one cares about apart from me…)
Chris’s concept of making the most of his 6 weeks off:
  • Lie-ins
  • Skyrim
I can see a few discrepancies there.  We may need to try that old gem ‘comprimise’.
It won’t technically be six weeks OFF as he’ll be picking up bank shifts where he can and i’ve volunteered to work some extra nights at work when the unit is short staffed (more financially motivated than altruistically motivated i’ll admit, but the end result is the same) but it’s still going to feel like six weeks off, compared to the previous six weeks where we’ve been juggling so many balls it’s a wonder any of them are still in the air.
I am slightly groggy from work last night but underneath the grog is an enormous sense of relief and excitement 😉