on being (begrudgingly) realistic

I am not renowned for realism, it has to be said, and so in cases where it is required I am a late-adopter, holding out hope long after it ceases to be sensible to do so.  That’s pretty unusual for someone with such high levels of anxiety I think, and at odds with my general belief that EVERYTHING IS GOING TO GO WRONG…and yet I hope, and hope that it won’t.

I particularly hate the need to be realistic when it relates to my chronic condition.  Even when I was really quite acutely unwell and newly diagnosed I was all “I totally can shower myself!” When it was quite plain for all to see that I could barely lift a spoon to my mouth to feed myself, never mind transport myself to a bathroom and attend to my hygiene needs without falling down flat on my face.

I was like ‘the little engine that could’, and this was my face whenever it turned out that actually I couldn’t:

pissythomas

 

(Incidentally, if anyone ever requires an image of a pissed off looking Thomas the tank engine- there are loads to choose from.  The dude has issues it would seem.)

 

Four years later, honestly, not much has changed.  I still like to think I can do everrrrrything, and you don’t want to be around me when I find out that I can’t.  I am getting better at accepting my limitations (I think?…Ok, maybe not…) but still don’t often fully realise them as part of my self-image and awareness.  This leads me to do things like apply for jobs that are actually beyond my physical capabilities.  That’s not a random non-specific example, that’s an actual thing that I did last week- securing myself an interview for a job that in reality, after considering it at length, I probably can’t actually physically manage- at least not reliably anyway.

Honestly?  It totally sucks.  Every time I tell myself that I can DO WHATEVER I WANT, and then struggle to drain a pan of pasta, or open a can of beans, or fasten a set of buttons without looking like I have the DT’s, I am reminded that actually Positive Mental Attitude is only a tiny part of the battle when it comes to life with CIDP, and that at the end of the day- it’s my nervous system that’s in control, not me (terrifying for anyone, but particularly a control freak like myself.)

But I decided that the right thing to do in this case, even though it felt pretty miserable, was to step back, and decline the post.  It’s one thing for me to be affected by CIDP, when I’m having a bad day or staring down a potential relapse, but in a job role where someone else would be physically dependent on me, it *wouldn’t* just be me that was affected.  So there it is.  Sometimes you want to do a thing, and think you can do the thing, but you actually can’t do the thing, and it’s better to realise it before you’re committed to the thing.

So that’s where I’m at.  Back in Job Search Hell.  I’m trying not to panic or feel too sorry for myself, because really what will that achieve?  But on the other hand I’m definitely feeling a bit sobered by the slowly dawning realisation that shit, I really am stuck in this malfunctioning body hey?

Job Search Hell

That’s where I’m at right now.  One of Dante’s lesser-known circles.

Possibly the worst bit is that I actually already have a job- one that I love and don’t want to leave.  So why am I looking for something else, you ask?  Good question.  The answer of course, is money.

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Turns out that working seven hours a week as a library assistant, and about fifty hours a week as a ‘writer’ pays…well…pretty close to nothing actually.

I’m aware we’re not supposed to talk about money- that in doing so I’m breaking some weird universal taboo, but honestly- who is this secrecy helping?  We all need to eat and somewhere to live, and I’ve yet to find a landlord or supermarket that accepts poems in lieu of payment, (not that I’d do much better even if I did, since I can’t write poetry for shit).

So, with a heavy heart I find myself looking for other options.  I spend about half of my time feeling really MAD about the unfairness of the situation, and the other half telling myself to STFU and stop thinking I’m some special snowflake who isn’t subject to the same economic strain as almost every other working class person on earth right now.

In more dramatic moments I hear Jim Broadbent, as Harold Zidler in Moulin Rouge:

zidler

(just change love to live)

In less dramatic moments, I tell myself that I’m no different to anyone else and that I’m lucky to at least be (vaguely) employable.

One thing that is really pissing me off as I trawl through job search results, is the demand on applicants to not just be willing to do the job for the pay, but the requirement to declare it your life’s ambition.

Seriously, if you’re looking to employ someone as a neurosurgeon, or helicopter pilot perhaps, I can understand you wanting the role to be one of that individual’s defining characteristics, and for them to display a real passion and significant dedication to the field.  But when you’re looking for a cleaner?  Isn’t it enough that they’re capable of doing the work, and that they’ll show up and give a shit, at least within proscribed working hours?  If you want someone to display AMBITION, ENTHUSIASM, FLEXIBILITY AND PASSION about cleaning a toilet, you’re possibly going to need to offer more than £7 an hour, and appreciate that you’re appealing to a very niche audience.

Ehhh…I don’t know, this could just be me having a surly attitude and poor work ethic, but when I stumble across yet another minimum-wage job that not only wants me to spend forty hours a week away from my children, my partner, my home, and my writing but also wants me to demonstrate that I will treat it as my #1 priority and life’s work, I find myself getting a bit ‘Braveheart’, yelling at the screen.

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It’s times like this I wonder if leaving nursing was a terrible terrible mistake.  But, when I (briefly) went back to it last year THAT felt like a terrible mistake, so how can that be true?

Gah.

Regardless, I should probably get back to it.  Incidentally if anyone knows of any kick-ass jobs that would allow me to keep my Saturdays at the library, and pay me enough to feed my children who basically never stop eating, then HIT ME UP.  As you can see, I am totally AMBITIOUS, ENTHUSIASTIC, FLEXIBLE AND PASSIONATE etc etc etc 😉